Sunday, April 1, 2007

Biomedical


Find your local autism pediatrician, naturopath (ND), homeopath, or nutritionist by going to: DAN! list
Leo's first and key practitioner was Dr. Nancy O'Hara in Connecticut.  We also used Lauren Stone (see under allergies/bioset below).

The Schafer Report The most read Autism publication. Read synopsis' of articles published daily. An Autism clipping service. Saves time for busy parents - all of the news in one document delivered via email. Database excellent for researching.

Discover Magazine, March 2007 Excellent handout for skeptical relatives and friends. Describes the unique GI and immune systems of our children.

Autism Research Institute started the biomedical movement, by first looking at vaccines, our food supply and other environmental issues. 

DIETS: Any parent can implement a diet on their own with the support of online parents and recipe books. Since many children with autism have GI and immune deficits, it makes sense that approximately half of our children make improvement. Although food doesn't cause autism, a diet that is easy on a child's system reduces those symptoms. Your child's response will guide you toward addressing causative factors.

The Paleo Approach  Not a diet book, per say!  It does a great "layman's" job of explaining how the immune system and GI tract work.  Lots of graphics and other visuals.  Amazing book that will help any parent or adult with autoimmune or immune issues. After all, understanding how the body works is half the battle.

GFCF Diet Join this free forum about the diet. 7000 members! Tons of free advice and support.

GFCF Directory. Contains the "no" list and other helpful links to get you started.



Allergies, Detox, Nutrition
These days there are so many wonderful practitioners to choose from that now have experience and training. Most of our kids have deficits in metabolic pathways which cause nutrition deficiencies, inflammation which leads to hyper-reactivity and allergies, and a build-up of toxins. We found Homotoxicology to be the most effective way to heal Leo:

Homotoxicology Mary Coyle, DiHom, originally helped us do our first long-term detox with this method. Later, Lauren Stone, PhD, continued this along with providing nutrition and Bioset care.

Research Study on NAET (similar to BioSET).



WHERE TO BUY SUPPLMENTS:
Try Kirkman Labs or Lee Silsby. Our ASD kids. There are many more!
You can do all your evaluating and shopping by yourself.  I have put together an Amazon list for convenience.  My intention was not to make money, but to make it easier to share info on supplements. This was the easiest way I could do it.  No need to buy from Amazon, so many other choices.  

Evaluating Supplements:  Be sure your supplements are high quality and contain the least amount of junk as possible.  Excipients are very common in supplements.  Educate yourself so you can prioritize so you can spend wisely.  Research all you can about a supplement being recommended.

Favorite Detox Brands

TESTING: Before you go and see an Autism doctor (nutritionist, MD, N.D., etc), become familiar with these various testing instruments. The more you know the more you can be a partner with your chosen professional on what steps to take, how to prioritize, etc. Also, tests are expensive so take a look at your options. Metametrix is my fave, a good place to start.  Genetic testing is also helpful in guiding treatment.  

TacaNow.org Jenny McCarthy doesn't have her own official website, so for those looking for the information and stories she shares, this is the website to go to. Technically, this isn't her site. There are lots of great links, not just to Biomedical but to Therapies.

Celiac NewsletterEven though this is a different disorder, Celiac organizations have lots of good info about diet, restaraunts, support, and the latest in research.

AutismNDI is an amazing resource for all the studies regarding GI and immune deficiencies. The rest of the site is an excellent resource as well.

Recent Vaccine Rulings Only 3 bad ones, 1 good one, out of 5,500 in total on the docket. NEW

Generation Rescue believes that childhood neurological disorders such as autism, Asperger's, ADHD/ADD, speech delay, sensory integration disorder, and many other developmental delays are all misdiagnoses for mercury poisoning. Excellent data on chelation, now recommended for all ASD kids.



Latitudes: An online magazine and forum for children with P.A.N.D.A.S. and other disorders

Dr. Madeline Cunningham, lead P.A.N.D.A.S. researcher

Lyme-Induced Autism Foundation (LIA): One of the many triggers for Autism, Lyme disease which is another epidemic. Our children have multiple infections behind their autism symptoms, with a compromised immune and GI system that sets the stage.  The group has been inactive for a while, but the archives of the Yahoo Group are priceless. 

Methylation for Laypeople

BOOKS:
For a complete list of books, click on Amazon list to the right.

Healing The Childhood Epidemics: Autism, ADHD, Asthma, and Allergies: The 4 A's 

Biological Treatments for Autism and PDD by William Shaw, PhD. (The DAN! Protocol bible)

Special Diets for Special Kids by Lisa Lewis

(SCD) Breaking the Vicious Cycle: Intestinal Health Through Diet By: Elaine Gloria Gottschall, et al

(BIOSET)The Food Allergy Cure : A New Solution to Food Cravings, Obesity, Depression, Headaches, Arthritis, and Fatigue by ELLEN DR CUTLER Go to Bioset Institute to find a practitioner near you. Research study on viability of NAET (similar to BioSET) 

Children With Starving Brains: A Medical Treatment Guide for Autism Spectrum Disorder, Second Editionby Jaquelyn McCandless

Enzymes for Autism and other Neurological Conditions by Karen L. Defelice
Enzyme therapy is one of the fastest emerging successful alternatives for people on the autism spectrum as well as other neurological conditions. Reports of significant improvements in health, pain reduction, language, food tolerance, socializing and other benefits emerge daily. Drawing on long-standing scientific research and trials by awide range of families, Karen DeFelice deals comprehensively with all the information on enzymes that parents orthose new to enzymes need: how enzymes work, who may benefit, what to expect, practical tested advice on selecting and introducing the right kind of enzymes, and how this can be combined with other approaches and therapies.

BabyCakes Cookbook: For the mainstream/pop culture side of things, here is an incredibly good baked goods cookbook. The best cookies, cupcakes, muffins, you'll ever find!

He's Not Autistic But....

How We Pulled Our Son From the Mouth of the Abyss by Tenna Merchent (Author) "For no apparent reason, he bangs his head on window ledges, asphalt, the floor, and with his hands..."


Environmental books
Fast Food Nation: The Dark Side of the All-American Meal by Eric Schlosser.
The title really doesn't do this book justice. This book is really about the history of our food supply. Eric tells us all about the food we buy in grocery stores, restaraunts, not just fast-food. All parents should read this in order to make informed choices.
Especially considering that one in six children born have a behavioral disorder. Do you ever wonder why wheatand dairy is in all packaged foods? Did you ever wonder what is IN packaged foods? This book is 1/4 of this book is research credits.

The Tipping Point by Malcolm Gladwelll is a fascinating study of human behavior patterns, and shows us where the smallest things can trigger an epidemic of change. Several examples in history are presented, where one small change in behavior created a bigger change on a national level. He also studies the type of person or group that it takes to make that change. Lots of information about society!

Blink also by Malcolm Gladwell explores how us humans make decisions. Snap judgments and mind reading are explored. A focus on the meaning of "thin slices" of behavior vs "thick slicing". . The key is to rely on our "adaptive unconscious"--a 24/7 mental valet--that provides us with instant and sophisticated information to warn of danger, read a stranger, or react to a new idea. My idol, Dr. Ami Klin of Yale is quoted!

Evidence Of Harm: Research that correlates a subset of ASD to mercury in vaccines.

The Omnivore's Dilemma
Michael Pollan writes about how our food is grown -- what it is, in fact, that we are eating. The book is really three in one: Thefirst section discusses industrial farming; the second, organic food, both as big business and on a relatively small farm; and the third, what it is like to hunt and gather food for oneself. And each section culminates in a meal -- a cheeseburger and fries from McDonald's; roast chicken, vegetables and a salad from Whole Foods; and grilled chicken, corn and a chocolate soufflé (made with fresh eggs) from a sustainable farm; and, finally, mushrooms and pork, foraged from the wild.

Excitotoxins
Alzheimers anyone? Neurodegenerative disease anyone? MSG.....aspartame...hydrolyzed protein..

Our Stolen Future by Theo Colborn, Dianne Dumanoski, John Peter Meyers NEW (well, even though the book's been around since '95) Groundbreaking book that introduced the notion that phthalates (plasticizers) are endocrine-disrupting chemicals that interfere with development. Hmm....craving active synthetic chemicals, persistent synthetic chemicals, other persistent chemicals, hormone havoc, gross birth defects, hormone disruptors, hormone disruption, hormone messages, other synthetic chemicals, estrogen mimics, disrupt hormones, falling sperm counts, docrine system, estrogenic chemicals, male sperm count, crossed bills, hormone mimics, estrogen exposure, plant estrogens, striped dolphins, disrupting chemicals, dioxin exposure, genital defects, persistent compounds? Excellent. It's the book for you.

The Puzzle of Autism: Putting It All Together by Dr. Amy Yasko and Dr. Garry Gordon
Book Description (Note: To buy her book, go to holistic health.com)A Guide to Transforming the Treatment of Autism. For Parents and Physicians. "Any parent or physician reading this book should be excited and hopeful. This protocol has been a tremendous benefit to a number of children. It has worked for children of all ages, and no, this protocol does not require that your child be less than five years old. Individuals up to 30 years of age have seen benefits from this program. However, it is not a magic bullet. For most children there is no magic bullet. It is a matter of perseverance, and slowly working your way through the program to gradually reverse the layers of damage, and put all of the complex pieces back together and in working order. Yes, it can be done, and it has been done. There are always the "quick fix" kids. The ones that only need a few supplements or just the first phase of the detoxification program to be on their way to recovery. We all hear about those cases, and it seems like everyone except YOUR child falls into that category. The reality is that most children do not fall into the quick fix category. But there is hope for every child. So, take a deep breath,
get ready for the marathon, pace yourself, but above all else don't give up on your children."

The China Study: Referred to as the "Grand Prix of epidemiology" by The New York Times, this study examines more than 350 variables of health and nutrition with surveys from 6,500 adults in more than 2,500 counties across China and Taiwan, and conclusively demonstrates the link between nutrition and heart disease, diabetes, and cancer. While revealing that proper nutrition can have a dramatic effect on reducing and reversing these ailments as well as curbing obesity, this text calls into question the practices of many of the current dietary programs, such as the Atkins diet, that are widely popular in the West. The politics of nutrition and the impact of special interest groups in the creation and dissemination of public information are also discussed.