Year 1:(Looking for a program, 2 years old) 45 minutes/wk sp. Ed. Tutor, 45 minutes/wk SLP, 6 hours/wk of typical daycare with age appropriate peers, kiddie gym class. Formal table sessions with parent 2 hours a day. 24/7 redirection, modeling, and prompting, copying what the therapists did. Target skills: Self-help, motor imitation, receptive and expressive object and action labeling, simple requests, and basic toy manipulation. Bio intervention: DAN! Protocol, GFCF, organic whole foods,supplements, no vaccines/antibiotics) Regrets: No ABA program - ideally we would've started right off with at least 25 hours.
Year 2: (Prek - 1st year, 3 years old) Typical preschool 2 mornings, daycare 2 afternoons, SLP 1 hr grp, Gymboree, 2 typical playdates per week. Formal table sessions with parent 2 hours a day. Approx. 16 hours/wk with typical peers is 16. Zero hours in Special Ed environment. All services take place at home elementary school. Target skills: Complex skills including imaginary play, describing and complex language, emotion recognition, and basic cause and effect, with an emphasis on generalization. Bio intervention: DAN! Protocol, GFCF, organic whole foods,supplements, no vaccines/antibiotics) Regrets: No ABA program, especially the part where he had no shadow. All those opportunities lost.
Year 3: (Prek - 2nd year, 4 years old) Typical preschool 3 mornings, daycare 2 afternoons, SLP 3 hours one-to-one, 3 hrs ABA one-to-one, 11 hrs ABA shadow at typical prek/daycare, 0T 1 hr, PT ½ hr, totaling 14 hours of typical peer time, 7 hours of one-to one therapy. Formal table sessions with parent 2 hours a day. Zero hours in Special Ed environment. Target skills: Abstract skills such as abstract reasoning, senses, observational learning, and social skills are targeted Bio intervention: DAN! Protocol such as The Diet, Chelation, organic whole foods,supplements, no vaccines/antibiotics) Regrets: Not enough ABA hours - not for lack of trying
Year 4: (Prek- 3rd year, 5 years old) Not even a question, we held our fall birthday boy. He needed that extra year to continue therapy in an environment he blossomed in. Typical preschool 5 afternoons, daycare 5 mornings, SLP 2 hours one-to-one, 3 hrs ABA one-to-one, 27 hrs ABA shadow, OT 1 hr, PT ½ hr, totaling 33 hours of typical peer time, 7 hours of one-to one therapy. Target skills: Theory of mind and executive functioning skills, understanding cause and effect, relationships, predictions, inferences, and comprehending social cues. Bio intervention: DAN! Protocol (diet, chelation, enzymes), organic whole foods, supplements, no vaccines.
Recovery Year 1:( Kindergarten, 6 years old) Leo began his first year at a typical elementary school with no support. He no longer requires an aide or any therapy such as ABA, SLP, OT, and PT. Leo's teacher does not know about his former diagnosis or that he had services of any kind. Leo's friends and their parents do not know about his former life either. He rides the bus to and from school, and is a regular student in his class. He enjoys recess, music, art, gym, and library time. He maintains lots of friends and is very social. Bio intervention: Still continue GFCF diet, even at school. Still maintains organic whole foods lifestyle including supplements and mild occasional detoxing to minimize toxic load.
Recovery Year 2 (1st grade, 7 years old)Leo continues to enjoy his new life. His first grade teacher doesn't know about his past. He is flourishing academically and socially. He loves school, and is a happy guy. He maintains his old friends while making new ones. Minor executive functioning issue (callingout, talking out of turn). Marked improvement from beginning to end of year. Doesn't stand out - 3 other classmates that do this lack impulse control across other situations as well. That's kids, but I know the reason behind Leo's weakness. 45 out of 50 highest
academic marks, the rest satisfactory. Incredible story telling ability, amazing math understanding. Handwriting perfect for a 1st grader. Bio intervention same as Recovery Year 1.
Recovery Year 3 (2nd grade, 8 years old) Business as usual. Teacher is mediocre but Leo is growing and learning per usual. Minor executive functioning issue remains (talking out of turn when excited about a topic). Showed improvement over the year. Hi marks continues. Excels in all categories - math, reading, and personal development. Handwriting perfect. Bio intervention same as Recovery Year 1. Year ended quietly, a success.
Recovery Year 4 (3rd grade, 9 yrs old) Excellent teacher this year. Anonymity intact. A typical 3rd grader. He enjoys baseball and carpooling with his close friends. As a solid B student, his marks are improving all around. Holds his own even in challenging areas like organization, strength for Gym, creativity for Art. He has demonstrated a gift for Music, plays the piano at home, and at school the Recorder. Performed publicly for the first time by joining his 3rd grade class in the Spring Concert. Played AA, loves baseball and is very average. Bio intervention similar as Recovery Years 1 and 2. Utilizing more homeopathic/herbal supplements for annual detoxing and health maintenance. Blood sugar sensitivity almost non-existent. We are no longer limited by a food schedule because of it. Reduced dependency on Soy, so have added a little Dairy into his diet (with enzymes) on occasion. Our annual goal is to reduce intake of products that contain GMO's and endocrine disruptors/estrogen mimicers (like Soy, hidden MSG). We are trying to be more "green" at home, and reduce our reliance on plastic products.
Recovery Year 5 (4th grade, 10 years old). Mediocre teacher this year. His first male teacher. So far he finds school extremely boring until lunch. Has his BFF in class, and so far looks like it's a good group of kids. Playing AAA fall ball, and loves watching football and playing fantasy football and Guitar Hero with Dad. Continues to be GF, low soy, and low processed foods, much like last year. Leo enjoys gluten infractions for social reasons. I'm also not as strict with the gluten - I don't care about sauces and ingredients where it's fractional. As long as he doesn't do it too often and takes enzymes regularly, it's manageable. We detox regularly and have him on a nutrition/immune protocol to help manage his tics (they come and go in severity). We take advantage of GF popularity and order GF pasta and pizza regularly from restaraunts that DELIVER. Unheard of when he was a toddler. I bask in the convenience!
Leo played basketball during the winter - his first time, but he learned the game and caught on and really loved it. Not naturally aggressive, so he had to really work on "getting in there", amazing considering his hypersensitive eyes. Music, yo-yos, and Teck Decks, and riding his bike are big. Spring has been great - no allergy symptoms (yeah!), just started baseball - loves to pitch, has a great arm (really, not just mom saying it!). Grades are excellent - a solid B student - A's in math and science. Shows improvement across the board with the exception of "Effort" in writing. He just doesn't care and there's not much motivation from his teacher. Standardized testing seemed fine - will follow up to make sure there is improvement with the results.
Recovery Year 6 (5th grade, 11 years old)
Doing amazingly well as a "new" kid in his school. Puts himself out there, playing with different kids, acclimating nicely to everythig being new. A real concern for us for obvious reasons. Same regiment as last year: GF, low soy, and low processed foods. Leo enjoys gluten infractions for social reasons. I'm also not as strict with the gluten - I don't care about sauces and ingredients where it's fractional. As long as he doesn't do it too often and takes enzymes regularly, it's manageable. We detox regularly and have him on a nutrition/immune protocol to help manage his tics (they come and go in severity).
Because my daughter was diagnosed with chronic Lyme last fall, we discovered that in addition to a chronically high strep load Leo also has one of the Lyme co-infections Mycoplasma Fermentans along with a very low load of Lyme. We have had great success adding a new treatment, Rifing, to the schedule. We dramatically reduced his bacteria load with this $1500 machine, now we are hooked! The tics were COMPLETELY GONE for months! He had no tics from May/June until just recently ( a newly unidentified culprit). I am sure we'll figure it out soon between the rife machine and the homeopathy machine.

3 comments:
Wow, I'd like to hear more about Leo's progress. How is baseball coming along?
My son was healed of autism and prospers in many areas of life. I've shared his story with everyone we can. I'm proud to tell others about his achievements.
I hope you will post more about Leo for 2009. Take care!
Love,
Happy Mom
Thanks Supermom! Yes, Leo is doing great - he did baseball camp this summer and loved it. He also tried golf for the first time and really enjoyed that too. He now wants to play all the time with his dad and of course get his own clubs. He's enjoying going to our local pool every afternoon and swimming and playing volleyball with his friends. We continue with his biomedical protocol that keeps him healthy. Fortunately for us he can now eat "whatever he wants" during social events with no adverse effects.
I'll post more soon when I have some time. My daughter has chronic Lyme so I am pretty occupied with her health.
Thanks for writing!
Supermom, do you have a website?
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