Year 1:(Looking for a program, just diagnosed at 2 years old) 45 minutes/wk sp. Ed. Tutor, 45 minutes/wk SLP, 6 hours/wk of typical daycare with age appropriate peers, kiddie gym class. Formal table sessions with parent 2 hours a day. 24/7 redirection, modeling, and prompting, copying what the therapists did. Target skills: Self-help, motor imitation, receptive and expressive object and action labeling, simple requests, and basic toy manipulation. Bio intervention: DAN! Protocol, GFCF, organic whole foods,supplements, no vaccines/antibiotics) Regrets: No ABA program - ideally we would've started right off with at least 25 hours.
Year 2: (Prek - 1st year, 3 years old) Typical preschool 2 mornings, daycare 2 afternoons, SLP 1 hr grp, Gymboree, 2 typical playdates per week. Formal table sessions with parent 2 hours a day. Approx. 16 hours/wk with typical peers is 16. Zero hours in Special Ed environment. All services take place at home elementary school. Target skills: Complex skills including imaginary play, describing and complex language, emotion recognition, and basic cause and effect, with an emphasis on generalization. Bio intervention: DAN! Protocol, GFCF, organic whole foods,supplements, no vaccines/antibiotics) Regrets: No ABA program, especially the part where he had no shadow. All those opportunities lost.
Year 3: (Prek - 2nd year, 4 years old) Typical preschool 3 mornings, daycare 2 afternoons, SLP 3 hours one-to-one, 3 hrs ABA one-to-one, 11 hrs ABA shadow at typical prek/daycare, 0T 1 hr, PT ½ hr, totaling 14 hours of typical peer time, 7 hours of one-to one therapy. Formal table sessions with parent 2 hours a day. Zero hours in Special Ed environment. Target skills: Abstract skills such as abstract reasoning, senses, observational learning, and social skills are targeted Bio intervention: DAN! Protocol such as The Diet, Chelation, organic whole foods,supplements, no vaccines/antibiotics) Regrets: Not enough ABA hours - not for lack of trying
Year 4: (Prek- 3rd year, 5 years old) Not even a question, we held our fall birthday boy. He needed that extra year to continue therapy in an environment he blossomed in. Typical preschool 5 afternoons, daycare 5 mornings, SLP 2 hours one-to-one, 3 hrs ABA one-to-one, 27 hrs ABA shadow, OT 1 hr, PT ½ hr, totaling 33 hours of typical peer time, 7 hours of one-to one therapy. Target skills: Theory of mind and executive functioning skills, understanding cause and effect, relationships, predictions, inferences, and comprehending social cues. Bio intervention: DAN! Protocol (diet, chelation, enzymes), organic whole foods, supplements, no vaccines.
Recovery Year 1:( Kindergarten, 6 years old) Leo began his first year at a typical elementary school with no support. He no longer requires an aide or any therapy such as ABA, SLP, OT, and PT. Leo's teacher does not know about his former diagnosis or that he had services of any kind. Leo's friends and their parents do not know about his former life either. He rides the bus to and from school, and is a regular student in his class. He enjoys recess, music, art, gym, and library time. He maintains lots of friends and is very social. Bio intervention: Still continue GFCF diet, even at school. Still maintains organic whole foods lifestyle including supplements and mild occasional detoxing to minimize toxic load.
Recovery Year 2 (1st grade, 7 years old)Leo continues to enjoy his new life. His first grade teacher doesn't know about his past. He is flourishing academically and socially. He loves school, and is a happy guy. He maintains his old friends while making new ones. Minor executive functioning issue (callingout, talking out of turn). Marked improvement from beginning to end of year. Doesn't stand out - 3 other classmates that do this lack impulse control across other situations as well. That's kids, but I know the reason behind Leo's weakness. 45 out of 50 highest
academic marks, the rest satisfactory. Incredible story telling ability, amazing math understanding. Handwriting perfect for a 1st grader. Bio intervention same as Recovery Year 1.
Recovery Year 3 (2nd grade, 8 years old) Business as usual. Teacher is mediocre but Leo is growing and learning per usual. Minor executive functioning issue remains (talking out of turn when excited about a topic). Showed improvement over the year. Hi marks continues. Excels in all categories - math, reading, and personal development. Handwriting perfect. Bio intervention same as Recovery Year 1. Year ended quietly, a success.
Recovery Year 4 (3rd grade, 9 yrs old) Excellent teacher this year. Anonymity intact. A typical 3rd grader. He enjoys baseball and carpooling with his close friends. As a solid B student, his marks are improving all around. Holds his own even in challenging areas like organization, strength for Gym, creativity for Art. He has demonstrated a gift for Music, plays the piano at home, and at school the Recorder. Performed publicly for the first time by joining his 3rd grade class in the Spring Concert. Played AA, loves baseball and is very average. Bio intervention similar as Recovery Years 1 and 2. Utilizing more homeopathic/herbal supplements for annual detoxing and health maintenance. Blood sugar sensitivity almost non-existent. We are no longer limited by a food schedule because of it. Reduced dependency on Soy, so have added a little Dairy into his diet (with enzymes) on occasion. Our annual goal is to reduce intake of products that contain GMO's and endocrine disruptors/estrogen mimicers (like Soy, hidden MSG). We are trying to be more "green" at home, and reduce our reliance on plastic products.
Recovery Year 5 (4th grade, 10 years old). Mediocre teacher this year. His first male teacher. So far he finds school extremely boring until lunch. Has his BFF in class, and so far looks like it's a good group of kids. Playing AAA fall ball, and loves watching football and playing fantasy football and Guitar Hero with Dad. Continues to be GF, low soy, and low processed foods, much like last year. Leo enjoys gluten infractions for social reasons. I'm also not as strict with the gluten - I don't care about sauces and ingredients where it's fractional. As long as he doesn't do it too often and takes enzymes regularly, it's manageable. We detox regularly and have him on a nutrition/immune protocol to help manage his tics (they come and go in severity). We take advantage of GF popularity and order GF pasta and pizza regularly from restaraunts that DELIVER. Unheard of when he was a toddler. I bask in the convenience!
Leo played basketball during the winter - his first time, but he learned the game and caught on and really loved it. Not naturally aggressive, so he had to really work on "getting in there", amazing considering his hypersensitive eyes. Music, yo-yos, and Teck Decks, and riding his bike are big. Spring has been great - no allergy symptoms (yeah!), just started baseball - loves to pitch, has a great arm (really, not just mom saying it!). Grades are excellent - a solid B student - A's in math and science. Shows improvement across the board with the exception of "Effort" in writing. He just doesn't care and there's not much motivation from his teacher. Standardized testing seemed fine - will follow up to make sure there is improvement with the results.
Recovery Year 6 (5th grade, 11 years old)
Doing amazingly well as a "new" kid in his school. Puts himself out there, playing with different kids, acclimating nicely to everythig being new. A real concern for us for obvious reasons. Same regiment as last year: GF, low soy, and low processed foods. Leo enjoys gluten infractions for social reasons. I'm also not as strict with the gluten - I don't care about sauces and ingredients where it's fractional. As long as he doesn't do it too often and takes enzymes regularly, it's manageable. We detox regularly and have him on a nutrition/immune protocol to help manage his tics (they come and go in severity).
Because my daughter was diagnosed with chronic Lyme last fall, we discovered that in addition to a chronically high strep load Leo also has one of the Lyme co-infections Mycoplasma Fermentans along with a very low load of Lyme. We have had great success adding a new treatment, Rifing, to the schedule. We dramatically reduced his bacteria load with this $1500 machine, now we are hooked! The tics were COMPLETELY GONE for months! He had no tics from May/June until just recently ( a newly unidentified culprit). I am sure we'll figure it out soon between the rife machine and the homeopathy machine.
Recovery Year 7 (6th Grade, 12 years old) I couldn't be more proud of Leo. Still new from our big move from New England to the North West, he is popular, has new friends from other elementary schools, and is making straight As. Most important, he is happy and adjusted not only to middle school but also to his totally new life. He loves his new city, our new home, and his lifestyle here. Leo plays baseball year round and is dedicated to the sport. He exercises regularly, looks much more athletic in his form and function than ever before.
Leo is doing great healthwise. He seems to be starting puberty, and so far nothing seems way off. I am nervous to go through puberty with his makeup, it is yet one of those big milestones. Surprisingly, he is no longer hypotonic. He isn't muscle man either, but I am so happy for him. It must be those hormones filling in those missing pieces.
Leo continues to avoid gluten and sugar, but does eat the school lunch about twice a week. He also eats "normal" food on social occasions. We continue eating organic/whole foods at home without sugar and gluten.
Leo continues with an immune boosting regiment and also currently under treatment for Lyme disease. He is basically symptom free, just occasional facial tics that are mild enough to pass unnoticed by peers. We know the tics are the continued sign of Lyme and also a compromised immune system. He seems to no longer have symptoms of P.A.N.D.A.S. nor has his testing the past year indicated a high load of strep. He is still a very healthy boy considering but still has a weak immune system.
Recovery Year 8 (7th grade, 13 years old) Leo is doing great in his second year of middle school. He is getting so big, and puberty is definitely showing it's face with pimples and attitude. I embrace it all, love all the typical stuff that's happening. Although, I wish he'd talk to me a little more:)
He continues to have a nice group of friends at school. They get together on days off, and go to movies, or hang out here at home and play ping pong or catch. I was a big girl, and actually DROPPED him off at a movie theater to meet a friend. I was so proud of myself! haha He texted me when he needed me to pick him up. Ah, the new normal I suppose. He plays baseball year round, and has taken up tennis as another activity.
School is going well. Still strange for me to not have any idea what his days are like, and to not have a rapport with every single teacher. But, he is happy and seems to be learning. He got his locker broken into, and he handled that well.
Leo's health is great. We continue with eating healthy (same as last year), and still on a Lyme regiment. According to his doc, he is ahead of the curve of where he should be, and continues to be symptom-free of brain fog, fatigue, headaches, and facial tics that plagued him from the Lyme. His does occasionally get the tics, but they are very mild and happen around seasonal allergies, big weather changes, and the onset of an illness. It is a warning sign for me to give him Occillococcinum or something else that will protect him from whatever is going around.
Leo is doing great at religious school, and it warms my heart to see him with his community of about 30 kids. They are good friends. I drop him off before class so he can have dinner with his friends. It's a great program, and I am so grateful he has that to count on and to enrich his life.